|
Mission
This epilepsy sites navigator was created to serve those people affected by seizures through support, encouragement
and education in order to provide them with a positive quality of life. This site was created by a person with epilepsy and
the VNS implant who has also undergone a craniotomy and is offering knowledge, real life experiences and support
for persons with epilepsy and for friends & family members of those with epilepsy and seizure disorders. It is hoped
that the sites within this webpage shall offer information to whatever one's epilepsy needs.
EPILEPSY FOUNDATION OF AMERICA
4351 Garden City Drive
Landover, MD 20785-7223
(800) 332-1000
The EFA is an excellent resource tool
regarding research, advocacy, local affiliate groups, daily chat rooms, links to other sites and so much more.
For those folks interested in participating in a daily
chat session (people with epilepsy, parents with parents, teens, seniors, friends, etc.) EFA offers daily chat sessions at 8:00pm EST, 7:00pm CST, 5:00pm PST, click on the link below:
Click on the Capital to learn more about six term congressman Tony Coelho, the
primary author and sponsor of the ADA & chair of the EFA Board of Directors.
______________________________________________________
Click to the left to enter BrainTalk site's epilepsy chat room
____________________________________
Welcome to the most thorough epilepsy tracking site, where you can chat,
send private messages, set up siezure logs, monitor your health, learn about your symptoms, treatments, research under
way and so much more!
_________________________
Click below to enter a site where you can veiw the definition of multitudes of seizure
types & a wealth of other useful info
______________________________________________________
AMERICAN EPILEPSY SOCIETY
AES promotes research and education
for the professionals dedicated to the prevention, treatment and cure of epilepsy.
________________________________________________________
EPILEPSY CANADA
offers useful information such as types of seizures,
myths & misperceptions about epilepsy, a historical perspective and other tidbits.
_____________________________________________________
To find out the definition of epilepsy, its causes, its risk factors, its symptoms, its diagnosis and so much more, click on the site link to the right.
_________________________________________________
Click on the WebMD icon to find a wealth of info on epilepsy
______________________________________________
Find out more about Seizure Alert Dogs and
what they can do.
Dog dials 911 to save owner. Click on the picture to find out more information.
Paws with a Cause is the largest provider of Service Dogs
trained to deal with seizure disorders. Click on the icon above to find out more information.
_______________________________________________________
Click on the happy driver to find out how long
you must be seizure free in your state before you can drive again
Click to the right to find out about menstrual
related seizures
Find out here what your rights are in the work place
Click on the Clinical Trials link to see how the RNS study is progressing.
Allow the people at the National Institute of Health to tell you about any clinical trials in progress
for persons with seizures
Allow the folks at the American Academy of Neurology
tell you everything you wanted to know about many different brain disorders, their symptoms, their treatments and how to live
with a brain disorder
The Invisibilities Advocate is here
to offer you both inspiration as well as a wealth of information to uplift and encourage you
Let Epilepsy Toronto tell you all about your nutrition, exercise,
memory, meds & much more and how they are affected by epilepsy
Click here to find out more about Deep Brain Stimulation
Let the people at the Centre for Neuro Skills tell you about seizures & genetics
and so much more
Whether it's epilepsy or any other chronic illness, here are some tips on who to tell, what your employer needs to
know, and what people should do in case of an emergency.
Take a peek at the 5 most important tech advancements that have allowed us
to look into the structure and function of the living brain.
So what can you do if you have tried every AED cocktail
under the sun without success? Have you thought about trying hearbals? Read here first what is known about various homeothic
remedies.
Click on the glowing brain to find out more about clinical trials around the U.S. regarding epilepsy.
Click on the swimmer to the right to watch a video and to learn more about epilepsy
& water safety.
Click to the left for an online community where parents have access to valuable
data resources about rare, life-threatening diseases in children.
Memory problems? Who? Is it my age? Is it my AEDS? Is it my seizing? What was that again?
At justanswer.com you can ask your E questions and there are doctors and nurses on line waiting to give you
an answer right away.
CURE's main objecting is working toward the cause of epilepsy through increasing public
awareness and raising money for epilepsy research.
The goals of the Epilepsy Phenome/Genome Project are to better understand
what causes epilepsy, why some families have several people with epilepsy, and how we can better predict which anti-seizure
medications (or no medication) will work best for an individual.
Find out more about Dravet syndrome. Ds is known as a Severe Myoclonic Epilepsy of Infancy. It is a rare and catastrophic
form of epilepsy for which there is currently no cure.
The
International Dravet Syndrome Epilepsy Action League, a
volunteer-based nonprofit organization, was founded by parents of children with Dravet Syndrome to promote research
and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI
(Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
Let the WHO provide you with an historical overview
of epilepsy, from the first cases recorded through the ages until present day.
Do you have any questions or want to talk about epilepsy? Coping
With Epilepsy is a friendly site for everyone to talk about anything related to living with epilepsy.
Click here to read up on some cool info about epilepsy
Get the facts on SUDEP... what
it means, what it can do, who it can effect, how to be cautious, etc.
WHAT IS SUDEP?
Click here
to find out more about the truth of one of the tragedies of epilepsy. Learn first hand from one family who endured the sorrow
of SUDEP's agony and sorrow. Become educated. Silence is NOT an option!
|
